I have narcolepsy, ask me anything?

21 Comments

As a person with narcolepsy, i also have cataplexy. Cataplexy was already rare as it is, but cataplexy is even more rare i guess?? But anyways, if you have any questions, feel free to ask me anything. Or if anyone else has narcolepsy, talk to me.

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Comments ( 21 )
  • Ummitsstillme
    3 years ago

    Have you faked it to get out of something you didn't want to do?

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    • Lazyllama0323
      3 years ago

      No, that wouldn't be right

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    • [Old Memory]
      3 years ago

      A guy I lived/worked with for some time would fake seizures to get a break

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      • Lazyllama0323
        3 years ago

        Oh?

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        • [Old Memory]
          3 years ago

          Not discrediting his affliction, his girlfriend knew he did it too and he ended up admitting it several times

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  • YE
    3 years ago

    How do you deal with falling asleep in the middle of typing?

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    • Lazyllama0323
      3 years ago

      God it sucks so much, but I just wake up, put my phone down, and take a little nap

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  • [Old Memory]
    3 years ago

    What does it feel like when you're awake?

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    • Lazyllama0323
      3 years ago

      For the most part, it feels like any normal person feels like

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      • [Old Memory]
        3 years ago

        I mean mentally for you, knowing you could pass out at any moment, how do you get through the day knowing that?

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  • Grunewald
    3 years ago

    Do you get/have you got in trouble at school for falling asleep in class?

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    • Lazyllama0323
      3 years ago

      Yup but they give me nap time. :)

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  • Tommythecaty
    3 years ago

    1. How can cataplexy be even more rare than cataplexy.

    That is all.

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    • Lazyllama0323
      3 years ago

      No I was just saying that narcolepsy is rare in general, and its even more rare to get it with cataplexy

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      • Tommythecaty
        3 years ago

        Sounds like a very shitty combination to have.

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    • LloydAsher
      3 years ago

      It's common pairing with narcolepsy. It's rare to get it without narcolepsy.

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      • Tommythecaty
        3 years ago

        That may be, but it does not answer my question taken from the OP’s post.

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  • Lazyllama0323
    3 years ago

    1) Well, obviously I'm not going to say how old but I don't quite have a job yet, but i'm looking to be maybe a speech language pathologist or physical therapist
    2) yes, it happens, and it's scary. Last night I fell asleep face first in my spaghetti :\
    3) I'm not completely sure, but it does mess up the ability to drive. For now, they won't let me drive because it is scary for others.
    4) and no, I haven't, but that sounds scary

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    • LloydAsher
      3 years ago

      (You can hit reply you know)

      If I was narcoleptic I would personally go for more of an online kind of job or desk job and tell my boss to poke me with a stick if I fell asleep.

      Odd question here but, would you want to wear a shock wristband or something to jolt you awake if you fall asleep?

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      • Lazyllama0323
        3 years ago

        I mean, it might help because it would probably be better to be reminded when Im falling asleep, but yeah an online job might be best.

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  • LloydAsher
    3 years ago

    First: What do you do as a job.

    Second: can you fall asleep in any position such as standing?

    Third: does narcolepsy count as a disability?

    Forth: have you seen that one 1000 ways to die episode where a narcoleptic person fell asleep in a furniture treatment oven and was cooked?

    Thanks for posting. There should be more AMA

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