Is it normal to second guess medical teachings?

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9 Comments

The more I learn, the more certain I become that the formula to be followed for curing most of humanities' ailments is to seek out the freaks and try to understand why certain people are immune to certain diseases while others are not.

I postulate that for every human disease there are a few lucky freaks of nature who have the ability to cast off that which would kill another human who was born without this abnormality.

So far there have been several people on the planet who have contracted HIV Aids and have cured themselves completely due to their own unique genetics.

Obviously an ever growing open source data-base of people sharing such abnormalities, their stories, and their medical information for researchers to access would be just the ticket.

Just as obviously, such groupings of information would not be in the best interests of pharmaceutical companies who are busy trying to isolate and patent these genetic abnormalities themselves.

I'm thinking that such corporate entities would be willing to spend a fair amount of cash to ensure that people do not share their information, and that sites where these connections are happening on their own are then inundated with under-bridge-type beings who are more than willing to accept money in order to obfuscate truth and drive genuine individuals away from wherever they happen to reside.

Is it normal, that this REALLY fucking picks my ass?

How to fix this?

That's the question...

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70% Normal
Based on 23 votes (16 yes)
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Comments ( 9 )
  • NeuroNeptunian
    8 years ago

    This is going to be a huge pain in the ass to concisely explain. You probably already know this but you are no where near the first person to have this idea.

    The problem with developing this "open source" or medical data, if we overlook HIPAA and other issues of patients' privacy rights is money. Finding and testing these gene samples costs a lot of money and the industries, companies, corporations and so forth who are willing to fund it want to see a return on their investment. Even the most charitable and well-intentioned of scientists must concede to the fact that they have to play by these rules if they want to make any progress in their research.

    In addition to that, people suck at keeping secrets, the government spends way more money on having to treat people than they even want to to begin with. The nature of a lot of these diseases (both genetically and pathologically) is way more complicated than even the most experienced scientists often take them for and considering that, I have even more trouble believing that there are straight out cures for these illnesses considering that the data these guys get is often lost in an oblivion of information due to the lack of a common platform of access.

    What would solve the problem? A common platform of access for all scientific research that is free of charge and accessible to the public. The only way to make this possible would inevitably cut into profit margins for the biotech industry and I'm not in the mood to explain the economic ramifications of that.

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    • green_boogers
      8 years ago

      You need to close your verbose dissertation with a conclusion about the conflict between "open source" and the profit motive. We're waiting.

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      • NeuroNeptunian
        8 years ago

        Uhhh *flips through slides on the telepromopter* well you see...

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    • Anewbis
      8 years ago

      Very good points.

      I'm not advocating for overlooking peoples' rights to privacy. By open source, I mean a place where folks can voluntarily allow researchers access to their medical records.
      You may wonder why anyone would volunteer this information?
      I think that although the number of people who have stumbled across whatever their own freak immunities are would be very low on a global percentage-wise scale, the actual number itself would be rather large now that there are seven billion (give or take a few) of us stumbling around.

      I'm betting that a large percentage of that group who've learned their immunities would gladly share their information if it meant a chance for actual cures for others who suffer from these things.

      For example both myself and my younger brother have something called Dupuytrens' contracture where your three outer finger eventually curl and become useless.
      Being the genetic freak that I am these growths raced acreoss my palms in a matter of months, made a bee-line for my thumbs, and then began to shrink from marble-size down to grains of rice size and are continuing to disappear without any loss of flexibility, strength, or dexterity.
      In my brothers case the growths detach and he reabsorbs them.

      None of these things exist in the medical literature on the subject.

      It was like beating my head against a brick wall to get a doctor to believe me, even though they have my records and can examine my hands for themselves.
      I finally found a specialist willing to video conference on the subject but nobody seems to care that my blood-line may be able to rid themselves of an incredibly debilitating disease.

      I for one would be very happy to contribute to any research which might lead to an actual cure, I've asked my brother and he would as well.

      There's no money in that though.

      I know it's naïve but that shit just sickens me.
      If corporate entities and fiscal responsibility are responsible for continued suffering, then those entities need to be dismantled.

      ...or better yet, forced into transparency.
      If any portion of a pharma-co's revenue came from government donation, grant, or tax-break, then a portion of their knowledge belongs to the people who footed that bill.

      Economic ramifications be damned.
      They're fucking over the health of our grandchildren and it needs to stop.

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      • NeuroNeptunian
        8 years ago

        Don't get the wrong idea, people donate blood and organs voluntarily all of the time. I have no issue believing that many people would volunteer anything short or their damned souls if it could possibly contribute to a cure.

        I'm not saying I agree with the way the system works but as it stands, that's what they have to work with.

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        • Anewbis
          8 years ago

          Systems change... sometimes quite rapidly.

          From what I've seen, the least violent of the past changes have involved active government involvement in what is actually best for the greater good of their... constituents.

          The current system sucks ass.

          ... and the cake is a lie.

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  • Couman
    8 years ago

    Build it, they will come.

    Just don't build it in the US or the FDA will shut you down.

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    • Anewbis
      8 years ago

      ............[Freaks'R'uS]............
      ~More toys than your attic can hold~

      Coming Soon To A Metropolis Near You!

      ratessubjecttochangelimitedlifetimewarranteeonapprovedcreditaskaboutourinhousespecialsallsalesfinal

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  • donteatstuffoffthesidewalk
    8 years ago

    seems like every week theyre breakin the latest news bout how that wonderful treatment they had in the past never worked and NOW we know the REAL truth

    or like whats good & bad for yall to eat seems to flipflop like hillary on campaign

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